Welcome to my new blog! This site will be primarily photos and perhaps a bit of information about being tube-fed. My goal is simple, to increase awareness about being tube-fed. Why? Because knowledge has the power to erase fear. I want people to see and understand that tube-fed people are as individual and unique as everyone else. There is no typical tube-fed person. I hope this place becomes a site for other to share their photos about being tube-fed. I hope my son never needs to feel embarrassed or ashamed about his tube.
My son, Apollo, is a healthy-looking, active toddler with a heart defect which prevents him from taking in enough calories by mouth. He gets about 90% of his calories by tube, the rest by eating a bit and breastfeeding. If you saw him at the park, you wouldn’t be able to pick him out of the crowd. With a shirt on and potato chip in his hand, you’d never guess that he has serious health issues.