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Welcome to my new blog! This site will be primarily photos and perhaps a bit of information about being tube-fed. My goal is simple, to increase awareness about being tube-fed. Why? Because knowledge has the power to erase fear. I want people to see and understand that tube-fed people are as individual and unique as everyone else. There is no typical tube-fed person. I hope this place becomes a site for other to share their photos about being tube-fed. I hope my son never needs to feel embarrassed or ashamed about his tube.

My son, Apollo, is a healthy-looking, active toddler with a heart defect which prevents him from taking in enough calories by mouth. He gets about 90% of his calories by tube, the rest by eating a bit and breastfeeding. If you saw him at the park, you  wouldn’t be able to pick him out of the crowd. With a shirt on and potato chip in his hand, you’d never guess that he has serious health issues.

 

If you have a photo you’d like to share, let me know!

bergerondozen (at) yahoo (dot) com

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3 responses »

  1. HI! My name is Brian Murphy and I work for Option 1 Nutrition, a specialty enteral and oral nutrition company. We are being considered for an award and have been asked to submit a photo that captures the reason we do what we do. I was wondering if we might be able to use one of your amazing pictures? Thank you!

    Reply
  2. I was so excited to stumble across your blog! My son has been seeing a GI doctor for seven months now because he isn’t thriving anymore. He eats, but nothing sticks. The doctor just told me that my son is going to need to be on a feeding tube until his BMI gets to normal. I’m a little freaked out, but reading some of your blogs have been very informative. Thanks!

    Reply

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