This photo was taken within the two months of Apollo having his g-tube placed. He had to be hooked up to the pump for 45 minutes at a time. We never let it slow us down!
Tilly wears Apollo’s pump backpack while Apollo gets tube-fed.
Apollo hangs out with his brother while he get fed from his Kangaroo Joey Feeding Pump.
2 brothers with Eosinophilic Esophagitis, 2 brothers with Mic-Key Gtubes…
Carson was diagnosed with EoE at age 2 1/2. He’d had a Nissen prior, and suffered from a handful of allergies(peanuts, tree nuts, eggs, milk, pork and beef). Carson got his g-tube at age 7(2/11).
Jake was diagnosed at age 6. He had a handful of allergies prior, but that fall, his allergy list exploded to well over 40 positive foods. With his EoE in full flare, he was put on a g-tube(and formula only) at age 7(2/08).
From blog reader Kim:
Leo is one of 6 so life is never quiet. We are vacationing for a week at Cape May, NJ. I will admit it is harder to vacation with a tube fed child, just remembering all the supplies needed for a week away, but it is NOT impossible. Leo has eaten on the beach numerous times this week. He has a rare genetic syndrome called Wolf hirschorn. He had an ng tube and then last year got a g-tube. We are working on oral feeding and hope that one day he may eat by mouth.